Wednesday, April 12, 2006

APS & Thrombopilia Support Groups

At the APS Friends & Support site, you read messages from others under headings interesting to you. You can start new messages or add comments to the string of messages that already exist. It can be found by going to http://www.apsforum.com.

A forum run by Heidi & Tina founders of the APS Foundation of America, Inc., a non profit organization.This forum is an information source and a friendly support group for people who have Antiphospholipid Antibody Syndrome or for anyone who's lives are touched by it.

It is sometimes referred to as APS, APLS, or APLA and is known as Hughes Syndrome or "Sticky Blood" in the UK.

APS is an autoimmune clotting disorder that causes recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism.

If this disease touches your life in some way, please feel free to join in our discussions! :) We're glad to have you visit!

bloodclotting-disorders-thrombophilia-HughesSyndrome: http://health.groups.yahoo.com/group/bloodclotting-disorders-thrombophilia-HughesSyndrome/

Anti-Phospholipid_Antibody_Syndrome: http://health.groups.yahoo.com/group/Anti-Phospholipid_Antibody_Syndrome/

Antiphospholipid_Antibody: http://health.groups.yahoo.com/group/Antiphospholipid_Antibody/

AntiphospholipidAntibodySyndrome: http://health.groups.yahoo.com/group/AntiphospholipidAntibodySyndrome/

Brain Talk Communities: http://brain.hastypastry.net/forums/forumdisplay.php?f=267

APS-Syndrome: http://health.groups.yahoo.com/group/APS-Syndrome/

thrombosis: http://health.groups.yahoo.com/group/thrombosis/?yguid=123337734

APSgroup-USA: http://health.groups.yahoo.com/group/APSgroup-USA/

ntiphospholipid Antibody Syndrome Support: http://groups.msn.com/AntiphospholipidSyndromeSupport

Basic APS Links

DISCLAIMER: These webpages are not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members are only an opinions. All information should be confirmed with your personal doctor. Always seek the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from these webpages are not intended to diagnose, treat, or cure. This site is for informational purposes only.

If you think you may have a medical emergency, call your doctor or 911 immediately.

APS Foundation of America, IncThe APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, support, research, patient services and public awareness of Antiphospholipid Antibody Syndrome in an effective and ethical manner.

Antiphospholipid Syndrome Collaborative Registry (APSCORE)
This is for all who have expressed interest in the Antiphospholipid Syndrome Collaborative Registry.

This site will be updated on a regular basis with relevant research and news.Please email Gail Buxton if you have any questions or comments at:
Gail Buxton, Study CoordinatorAntiphospholipid Syndrome Collaborative Registry (APSCORE)University of North Carolina at Chapel Hill
Campus Box #7280
Chapel Hill, NC 27599-7280
919-966-0572 (o)
919-966-1739 (f)
buxton1@med.unc.edu

Welcome to The National Alliance for Thrombosis and Thrombophilia (NATT)
The National Alliance for Thrombosis and Thrombophilia (NATT) is a nationwide, community-based, volunteer health organization formed in August 2003. Committed to preventing and treating the array of major health problems caused by blood clots, NATT’s charter members were visionary patients attending a thrombosis and thrombophilia awareness meeting at the Centers for Disease Control and Prevention.
eMedicine - Antiphospholipid Syndrome : Article by Steven Carsons, MD

Factor V Leiden / Thrombophilia Support Page - living with thrombophilia

eMedicine - Antiphospholipid Antibody Syndrome : Article by Barry L Myones, MD

Unusual Manifestations of the Antiphospholipid Antibody Syndrome

HSS - Conditions & Treatments : Antiphospholipid Syndrome

THE CATASTROPHIC ANTIPHOSPHOLIPID SYNDROME (CAPS)

eMedicine - Antiphospholipid Syndrome : Article by Amiel Tokayer, MD

Antiphospholipid Antibody Syndrome

Hello & Welcome!

Hello and Welcome!

Since you have come here looking for Information about Antiphospholipid Antibody Syndrome, (or APS, APLS, APLA etc.) we have provided you with some links to get you started.

If you are newly diagnosed and have questions, we suggest that you come visit the APS Foundation of America, Inc. site at www.apsfa.org to find support and the answers you may have.

We also have the most up to date links on our APS Foundation of America, Inc Links page at www.apsfa.org/links.htm.

Hopefully this blog will help steer you in the right direction to get the answers and the information you are seeking.

Wishing you Great Health!
The APS Foundation of America, Inc Staff

Creative Commons License
APS Foundation's Blog by APS Foundation of America, Inc is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Based on a work at www.apsfa.org.